At the Nataliya Foundation, we are incredibly fortunate to have a team of remarkable advocacy who selflessly dedicate their time and energy to make a difference in the lives of those affected by rare diseases. Our volunteers are the heart and soul of our organization, and we are delighted to introduce you to these exceptional team members.

Natalia Foundation was founded in 2023 by a group of dedicated individuals driven by a common goal: to improve the lives of rare disease patients and their families. Inspired by our founder, Suzàn, we are committed to making a meaningful impact through our programs and initiatives. Join us in creating a better future for those affected by rare diseases. Together, we can make a difference.

Our mission is to improve the lives of patients affected by rare inherited metabolic disorders by creating a supportive network, empowering individuals with knowledge, advocating for accurate diagnoses and quality care, and facilitating access to the best available treatments and support systems.

Our vision is a future where individuals affected by rare inherited metabolic disorders receive the care and support they deserve, enabling them to lead fulfilling lives despite the challenges posed by their conditions. We aim to create a global community that is well-informed, empowered, and resilient in managing rare diseases.